Day 16 & Catch-Up!

We've been in a "holding pattern" here the last few days just waiting for her ANC to go up, so I apologize for the lack of updates! We played all morning on Thursday while she was out of bed and went from one activity to the next.  She was super energetic and happy and it was a nice change to see her acting "herself".  Normally she does one thing and then wants to get back in bed, so I had a feeling she was feeling better.  Sure enough we finally had our prayers answered yesterday morning when they told us that Addie's ANC came up to 60!  Its been at 0 the last several days, so it was a welcomed relief.   She had some special visitors one day, though she was having a "shy" moment, LOL.

She received her weekly dose of Chemotherapy on Friday and her doctor said it should not affect her ANC levels, but it unfortunately did drop to 40 today. Although it didn't go up, I am relieved it didn't fall all the way back to 0.  We are still hoping and praying to be discharged over this long weekend. COME ON ANC!  She has been doing great with taking her steroids crushed up in applesauce and thanks to them has had a pretty crazy appetite and is always craving things with salt. The downside to the steroids (in addition to her poor face becoming puffy) is her mood swings and overall attitude towards people, especially her parents & family.  That has been the most frustrating thing as her Mom- to see her go from extreme highs to extreme lows in a matter of seconds.  In those moments of her being so moody and bossy and blah, I miss my baby girl so much.  I know its just the medicine and I feel bad for even getting upset or frustrated with her because she has no control over what they are doing to her.  I just have to keep reminding myself that this is all temporary.

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If you follow me on Instagram (@Michelebell21), you would have seen that Addie and I both got a pretty amazing surprise on Wednesday when my Sister-in-law, Julie and Addie's 5 month old cousin Penelope busted into her hospital room!  They flew here from Louisiana and it put a huge smile on both of our faces.  It was also special because it was the first time Penelope got to meet her little cousin Bentley for the first time.  Seeing them together is too stinkin cute!  They are basically the same size, however 17 weeks apart!  Penelope is such a little peanut!

Everyday in the hospital they play a little tune every time a patient receives his or her last chemo treatment.  And every time we hear the music we cheer that their Beast is dead!  I can't wait for them to play the music for Addie.

With Love,